The Bone Cancer Research Trust has published one of the first major research studies into the experiences of patients living with primary bone cancer. You can download and read the report below, as well as watch interviews with some of the people involved.

Read 'Living with, and beyond, primary bone cancer'.

Coleen

I didn’t know you could get cancer in the bone. You’ve got breast cancer, and all these different cancers, but you never hear about them in a bone.

Coleen, who was diagnosed with osteosarcoma at the age of 14

Kelly

There is a lot you give up and there is a lot you learn to get around

Kelly, who was diagnosed with Ewing sarcoma at the age of 15

Sophie

It was the emotional impact that really took its toll

Sophie, who was diagnosed with Ewing sarcoma at the age of 8

Peter

I was first diagnosed with bone cancer in 1969 and to this day, it is still with me. The obvious effect is that I had my left arm amputated in 2004 so I’ve had to make so many changes to get by. Years later people say ‘well, you’re alright now.’ But you’re never alright with one arm.

Peter, who was diagnosed with Ewing sarcoma at the age of 27

Tony and Catrina

You’ve got this new life you don’t want. Life is never going to be the same again

Tony and Catrina, parents of Lucy, who was diagnosed with osteosarcoma at the age of 5