We are the leading charity dedicated to fighting primary bone cancer and are uniquely placed to make a difference through research, information, awareness and support.

For those affected by the disease right now, our top-quality information and supportive network means no-one should have to feel alone or isolated.


A world where primary bone cancer is cured


To save lives and improve outcomes for people affected by primary bone cancer through research, information, awareness and support.

Our values

  • Pioneering

    We lead the way, we leave no stone unturned, we are prepared to take risks.
  • Dynamic

    We don't stand still, we innovate, we celebrate every success.
  • Supportive

    We listen, we understand, we care.
  • Knowledgeable

    We know our stuff, we are eager to know more.
  • Trustworthy

    We do what we say we're going to do, we do the things that matter.

Our four pillars

  • Research

    To be a catalyst for pioneering research that saves lives and improves outcomes for people with primary bone cancer.
  • Information

    To be the trusted source of information for people who are affected by primary bone cancer, and the healthcare professionals who work with them.
  • Awareness

    To be the voice of the primary bone cancer community; raising awareness amongst the public, healthcare professionals, researchers and policy makers.
  • Support

    To be a supportive network for people affected by primary bone cancer; bringing people together, sharing stories that inspire hope, and signposting people to specialist support.

Our heritage

In 2004, a group of families who had lost children and young people to primary bone cancer came together. They wanted to tackle head-on the fact that there was virtually no accessible bone cancer information, and practically no funding for research into this disease.

Determined not to accept the status quo, the families pooled funds they had already raised, and together with guidance from Professor Ian Lewis (Consultant Paediatrician and Adolescent Oncologist at St James's University Hospital Leeds) the Bone Cancer Research Trust was registered in 2006.

The first research grants were awarded in autumn 2006. The charity's original logo was designed to show that two of the most common forms of primary bone cancer - osteosarcoma and Ewing sarcoma - tend to affect children and young people, and tend to start in the long bones of the arms and legs.

Today, the Bone Cancer Research trust aims to fund research into all forms of primary bone cancer, and ensure that information and support are available to patients of all ages.

Our old logo

Our original logo.