Raising vital funds for osteosarcoma research.

Scott's Story - told by his mum Natalie

Scott was born on 13.11.97, a bouncing baby boy weighing 9lb 14oz. From that day on he made us very proud.

From the age of 9, all that interested Scott was sport. He loved all sports, football in particular. He played for the school, Treharris Western FC and Merthyr FC. When he got older it became competitive, and he won player's player 3 times. He then took up rugby as well, even though I didn’t want him to. Again he played for the school, Cardiff districts and Treharris Rugby Club; winning player's player on his first full season.

Then, when Scott was 14, our world fell apart. He had been complaining for a few months of pain in his shoulder and arm, but the physio said it was just growing pains or a sports injury. Then one day he fell in rugby training and broke his humerus. A biopsy in Birmingham showed it was osteosarcoma; an aggressive form of bone cancer. Still we were positive, as it hadn’t spread. It would mean a year out for an intensive treatment plan involving chemo and surgery. As a 14 year old, Scott had the choice of the children's hospital, where he could have us around 24/7, or the Teenage Cancer Trust unit, for young adults, where he would be left alone overnight. Being a very mature 14 year old, he chose this. The next 9 months were heartbreaking; watching him lose his hair, leaving him at night and going up to Birmingham for major surgery to remove his humerus. We were told he would never regain full use of his arm. But he did it, and TCT became his second home and family. He was easy to get on with and was the youngest on the ward.

May 11th was Scott's last chemo. He signed the board and never looked back. He went back to school on the Monday, rather than waiting for the next academic year. He took his exams and passed 7 GCSEs. After 18 months in remission, he was enjoying life. Rugby was taken away, but he refused to give up football, even though it was a big risk. After 4 months he had his first game. It was scary and very emotional; he got 15 minutes of play and had a standing ovation coming off. Just as life was starting to feel normal, we were hit again. The cancer returned in his spine. Treatment options were getting limited, so again we had to go up to Birmingham, where the surgeons gave a 60 percent chance of a successful resection. He started on a new chemo for a few months before the surgery. He went through an horrific time, that only close friends and family really saw, but his determination saw him through. He learned to walk again, but it was harder emotionally this time, as there was no sport he could do. But again he shocked us with his attitude. Six months later he walked into Birmingham, so proud to show his consultant he could walk without any aids. Unfortunately, he was then told that the cancer had returned further up, and this time there were no treatment options available. It crushed us all.

We weren't prepared to let him go and found a new form of radiotherapy which could potentially kill the tumour without surgery. What he went through was horrendous and painful, but he never gave up. It kept the tumour inactive for a year. In this time he joined Treharris Pool League Team, winning player of the year.

After this, we had some normality again until January 2016 when the cancer returned again. This time there really was nothing they could do. Again we weren't prepared to let him go, so we found a clinical trial in Newcastle which he responded to brilliantly. His consultant even took scans abroad to show off. He had 2 tumours in his lungs when the trial started, which shrunk enough for 2 surgeries. The first few months of the trial were hard, but he did it. We then traveled up to Newcastle every 3 weeks for the next 2 years, for scans and check ups. We got to meet the most amazing medical team. On December 13th we had the devastating news that the trial had stopped working. Scott had the courage to call it a day. He said he had fought his fight and could do no more. He was just worried he was letting us down, which the team in Newcastle couldn’t believe. His attitude had them in tears. Although heartbroken, we respected his decision and I knew he had given his all.

The only thing that came out of all this, is we as a family gained a closeness we wouldn’t have had, and for that I’m grateful.

During his 7 year fight, he went on his first boys holiday to Zante, many trips to Benidorm and family holidays to Tenerife. He learned how to drive, owning and loving driving his BMW with his personal number plate SC07 ABO. He also got to spend the day with the Welsh Rugby Team, meet Gareth Bale and watch a Champion’s League Final. He made the most of the life he was given, never moaning or saying "why me".

He passed away on the 21st August 2019 as he wished, peacefully, with his family by his side

We want to set up this fund to continue to help raise money for research, so that kids in the future don't have to go through the same brutal treatments to beat this cruel disease.

As a family, we want to say how proud we are of him - he was an absolute legend.

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