Being diagnosed with a rare cancer can be an overwhelming time for many patients and their loved ones - with lots of emotions, unanswered questions and new information to take in at this time.
We have developed this 'Step-By-Step Guide For Patients' to take the pressure off some of these aspects and create a place to store new information, write down your questions or thoughts and receive information and advice in an easy-to-understand and digestible format.
If you have any further questions after reading this guide, or wish to share your thoughts on the guide with us, please get in touch at [email protected]
This resource was developed with help from the James Tudor Foundation. 