We are committed to producing information that is high quality, evidence-based, up-to-date and endorsed by experts, as well as real users.

About our information

At the Bone Cancer Research Trust (BCRT), one way we provide support is through producing and sharing information about primary bone cancer. The information is for anyone who might need it, from people affected by primary bone cancer to healthcare professionals.

We produce information about different types of primary bone cancer, its symptoms, diagnosis, treatments, and the support that is available to patients and their families. Our information is free of charge and provided in a range of formats. For example, printed leaflets and digitally, on our website. To order some of our printed resources, get in touch with our Support and Information Team or request them on our webpage.

The PIF TICK - our quality mark

We are committed to producing information that is high quality, evidence-based, up-to-date and endorsed by experts, as well as real users. To reflect this, in January 2023, we were awarded PIF TICK certification from the Patient Information Forum (a non-profit organisation). The PIF TICK is the UK’s only assessed quality mark for health information.

Being a PIF TICK member means we produce information in line with the following principles:

  • Information is produced using a consistent and documented process
  • Staff involved in information production receive training and support
  • The information resources we produce meet a genuine need
  • Information is based on reliable, up-to-date evidence
  • We involve people affected by primary bone cancer in the development of our resources
  • Health literacy, digital literacy, language and accessibility needs of our audiences are considered
  • Our information is written and designed in a way that makes it easy to use and understand
  • We invite and encourage feedback from users after publication
  • We aim to measure and evaluate the impact of our information

To read more about the PIF TICK and the 10 assessment criteria, visit the PIF website.

All of our resources are currently undergoing review to bring them into line with the PIF TICK criteria. Keep a look out for the PIF TICK on our resources, for peace of mind that the information is trustworthy, evidence-based and up-to-date.

How you can help us

To make sure people affected by primary bone cancer are at the heart of the information we produce, they are involved in reviewing our resources. This helps us make sure our information is clear, accessible and relevant.

If you would like to support us by reviewing our information, please contact our Support and Information Team. You do not need any special qualifications, just primary bone cancer experience and an interest in good quality health information. We aim to have a diverse group of reviewers and welcome hearing from people from all backgrounds and communities.

Your questions and feedback

If you have any questions or feedback about our information, please get in touch by emailing us or calling 0800 111 4855 (Monday to Friday, 9am to 5pm).

Our information disclaimer

The authors and reviewers of our information are committed to producing reliable, accurate and up-to-date content, reflecting the best available research evidence and best clinical practice. We aim to provide unbiased information free from any commercial conflicts of interest.

Our information should not be used for the diagnosis or treatment of medical conditions. The Bone Cancer Research Trust can answer questions about primary bone cancers, including treatments and research, but we are unable to offer specific advice about individual people. If you are worried about any symptoms, please contact your doctor.