This year our focus for Bone Cancer Awareness Week was on the rarer forms of primary bone cancer and non-cancerous tumours that arise in the bone.
We launched brand-new information dedicated to these types, which include Adamantinoma, Spindle Cell Sarcoma of the bone, Chordoma, Angiosarcoma of the bone, Ameloblastoma and Giant Cell Tumour of the bone.
We're the only charity to provide information dedicated to all the forms of primary bone cancer and non-cancerous tumours that arise in the bone, from our new downloadable fact sheets to in-depth printed materials.
Our 7 day social media campaign dedicated each day to a particular tumour type(s), with patient case studies, infographics with key statistics and symptom information, Q&As with surgeons and researchers, news stories about research developments, and much more.
One of our key researchers, Dr Allie Gartland, was interviewed on BBC Sheffield about the need for #BoneCancerAwareness and high quality information materials.
- We sent our new information materials to 31 hospitals specialising in treating patients with primary bone cancer
- Over 700 people supported the campaign by downloading our #BoneCancerAwareness Twibbon
- Over 15 key organisations and charities got behind our #BoneCancerAwareness campaign on social media, including Macmillan, Teenage Cancer Trust, CCLG, Great Ormond Street Hospital, and the Royal College of GPs. Check out our Storify of the week
- Our international Facebook campaign had an overall reach of nearly 500,000 people affected by primary bone cancer
- Over 35,000 people visited the Bone Cancer Research Trust website, with many of those viewing our new information materials; for example, 4,760 people accessed our new Chordoma information
This is the first time in 15 years that I have seen this much info about Adamantinoma in one place. Thank you BCRT!" - Liz Saul, Cyclist in GB Paracycling Squad and former Adamantinoma patient
Thank you so much for the information pack plus bunting which I have just received. I thought the fact sheet on osteosarcoma was excellent. Easy to read and very informative." - Healthcare Professional, Royal National Orthopaedic Hospital
Thanks to Team Bones for sharing this for me and for sharing all the information and awareness etc you have shared over this past week. Can't thank you all enough. Team Bones forever!" - Ruth, a former Ewing sarcoma patient who featured as a patient case study during the week
Such an informative read thank you. My daughter was diagnosed with Ewing's when she was eight and a half; she is now 15 and a half. A lot of this information at the time went past in a blur. Thank you for sharing this knowledge" - Sara, the parent of a primary bone cancer patient