The next meeting of the National Ewing Sarcoma Multidisciplinary Team (NEMDT) advisory group is planned for Thursday 25 May in Birmingham.
The NEMDT is a unique forum established in 2011 to improve the treatment planning and choices for patients with Ewing Sarcoma. It brings together experts from around the UK to discuss individual patient treatment plans to ensure good practice and ultimately to improve the survival rates of UK patients with Ewing Sarcoma. It was formed in 2011, following an international consensus meeting supported by the Bone Cancer Research Trust. You can read more about the project here.
Are you a patient or family member affected by Ewing Sarcoma? The second NEMDT meeting in Birmingham on Thursday 25 May will take place in the afternoon and lunch will be served. Craig Gerrand, an orthopaedic surgeon from Newcastle, and University College London Hospital radiotherapy consultant Beatrice Seddon will be in attendance.
Dr Jessica Bate, who is the National Ewing's Sarcoma MDT Clinical Research Fellow, will be chairing the meeting alongside Alexandra Donkin (Clinical Nurse Specialist, Sarcoma Team, UCLH) and has shared her plan for the meeting:
The purpose of this meeting is to understand which factors patients prioritise when making treatment decisions. We plan to discuss a number of different scenarios and ask for your preferences if it was you or a family member. We will then present the patient perspective on the same scenarios at our consensus meeting in June to a number of international Ewing's experts.
You will be working alongside current patients, survivors, parents of survivors and bereaved parents/family members."
Keen to get involved and attend? Please email uclh.ewingsarcoma@nhs.net to register your interest and for more information.