Get involved in our Strictly Research-funded project exploring the experiences of primary bone cancer patients

It is known that patients with primary bone cancer often have more problems during and after their treatment in comparison to some other cancers; which include the physical effects of the cancer and how well patients feel in themselves. It is also reported that patients with primary bone cancer report their diagnosis and treatment experience to be not as good as patients with other cancer types.

In order to find out exactly what these problems are, and how things can be improved, a new project funded by Sarcoma UK will produce a Sarcoma-Specific Patient-Reported Outcome Measure (or S-PROM for short). The S-PROM will be developed following informal interviews with patients in order to evaluate which services need to be changed for the better. This wider project will examine patients with all forms of sarcoma, including soft-tissue sarcomas. About 3,800 new cases of sarcoma are diagnosed each year in the UK, and of these, around 500 people will be diagnosed with primary bone cancer.

We at the Bone Cancer Research have funded £10,000 towards the project as part of Strictly Research 2016 in order to discover the key things that really matter to patients with primary bone cancer and measure outcomes which are important to bone cancer patients.

The researchers are looking for people with primary bone cancer to take part in a phone interview to explore experiences of being diagnosed, treated and living with bone cancer. Want to get involved and contribute your views? Download this information sheet, which details everything you need to know.