As part of our 5-year strategy, The Biggest Ever Commitment to Primary Bone Cancer, The Bone Cancer Research Trust are committed to producing accurate and reliable information resources for the primary bone cancer community.

In continuing with that commitment, we are developing a series of video information resources for patients facing an amputation and living beyond their surgery.

Louise Kirby, Support Manager at the Bone Cancer Research Trust, said:

We continuously listen to the needs of primary bone cancer patients and there has been an overwhelming demand highlighted for a new resource specifically for patients who have had or are facing an amputation. We are responding to this demand by developing a series of video information resources to guide and support patients through an incredibly difficult and life-changing period.

The video resource will include advice and guidance from medical professionals, rehabilitation specialists and primary bone cancer patients, who have personal experiences of an amputation in areas, including:

  • Preparing for surgery
  • Adjusting to new routines
  • The psychological impact of an amputation

Can you help shape our new video resource?

We would like to hear from those who truly understand what the journey of having an amputation is like. We have put together a survey and would appreciate greatly the input of amputees who have experienced primary bone cancer. There also will be an opportunity for patients and their families to take part in an informal focus group to discuss the planning of the video resource. If you are interested in being involved, please complete the appropriate section at the end of the survey. - This survey has now closed.

This project has been generously funded by the James Tudor Foundation