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Patient Stories

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  • All
  • Adamantinoma
  • Ameloblastoma
  • Angiosarcoma of the Bone
  • Chondrosarcoma
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  • Ewing sarcoma
  • Giant Cell Tumour of the Bone
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  • Spindle Cell Sarcoma of the Bone
  • Daniel Brain

    Ewing sarcoma

    Dan was diagnosed with Ewing sarcoma in his late thirties. Three years on, he now has…

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  • Susanna Patel

    Ewing sarcoma

    Susanna was diagnosed with Ewing sarcoma in 1987 when she was 16 years old.

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  • Kate Drummond

    Ewing sarcoma

    Kate was diagnosed with Ewing sarcoma in 2021.

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  • Paula Watson

    Ewing sarcoma

    In December 2019, Paula was diagnosed with metastatic Ewing sarcoma aged 43.

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  • Gabor Kabacs

    Ewing sarcoma

    Gabor was 43 years old when he was diagnosed with Ewing sarcoma in his left shoulder blade…

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  • Libby Atkins

    Ewing sarcoma

    Libby was diagnosed with Ewing sarcoma in her left femur (thigh bone) in August 2022 when…

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  • Evelyn Thomsen

    Ewing sarcoma

    In 2021, Evelyn was diagnosed with Ewing sarcoma when she was just 10 years old.

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  • Lucy McGeehan

    Ewing sarcoma

    Lucy was 5 years old when she was diagnosed with Ewing sarcoma in her upper thoracic spine…

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  • Lauren Fishman

    Ewing sarcoma

    Lauren was diagnosed with Ewing sarcoma in her rib in September 2017 when she was 14 years…

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  • Zachary Gagnon

    Ewing sarcoma

    10-year-old Zachary Gagnon was diagnosed with Ewing sarcoma in his right scapula in August…

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  • Poppy Stewart-Brown

    Ewing sarcoma

    Poppy Stewart-Brown was diagnosed with Ewing sarcoma in her jaw in 2019.

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  • Freddie Croft

    Ewing sarcoma

    ​In November 2019, Freddie was diagnosed with metastatic Ewing sarcoma at just 6 years…

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  • Hugh Kiddey

    Ewing sarcoma

    Hugh Kiddey was just 16 years old when he diagnosed with Ewing sarcoma in October 1999.…

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  • Cody Walker

    Ewing sarcoma

    Cody Walker was just 8-years-old when he was diagnosed with Ewing sarcoma in 2008. Cody…

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  • Claire Szydelko

    Ewing sarcoma

    Claire Szydelko was diagnosed with Ewing sarcoma in January 2017 at the age of 38, she…

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  • Mark Hughes

    Ewing sarcoma

    Mark was diagnosed with Ewing sarcoma in September 2010 aged 10. His symptoms began only…

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  • Sophie Hartley

    Ewing sarcoma

    At 8 years old, after months of intense leg pain, Sophie was diagnosed with Ewing sarcoma.

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  • Harmony Young

    Ewing sarcoma

    Harmony was diagnosed with Ewing sarcoma on the 9th of June 2020, aged just 8-years-old.…

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  • Abigail Frechou

    Ewing sarcoma

    Abigail was diagnosed with metastatic Ewing sarcoma 18th June 2019, when she was nine…

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  • Mark Newton

    Ewing sarcoma

    ​In November 2018, Mark, age 31 was diagnosed with Ewing sarcoma

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  • David Kay

    Ewing sarcoma

    David was just 17 years old when he was diagnosed with Ewing sarcoma and sadly passed…

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  • David Cowdell-Smith

    Ewing sarcoma

    33 years on, David, who was diagnosed with Ewing sarcoma at the age of 8, shares his inspiring…

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  • Marsha Danzig

    Ewing sarcoma

    Marsha shares her story of strength and determination 50 years on from her diagnosis of…

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  • Kerry Blackaby

    Ewing sarcoma

    ​August 2015, age 26, just three weeks before her wedding, Kerry was diagnosed with Ewing…

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  • Adele Stevens

    Ewing sarcoma

    ​Adele was 21 years old when she was diagnosed with Ewing sarcoma and she underwent treatment…

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  • Chris Fairley

    Ewing sarcoma

    ​In May 2018, Chris Fairley, age 30, was diagnosed with Ewing sarcoma in his pelvis. It…

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  • Vikki Noone

    Ewing sarcoma

    Vikki was diagnosed with Ewing sarcoma when she was just 17 years old and has shared her…

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  • Amy Young

    Ewing sarcoma

    Amy shares her journey with Ewing sarcoma and where she found her strength...

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  • Jack Rogan

    Ewing sarcoma

    Jack was diagnosed with Ewing sarcoma when he was just 11 years old. Jack’s Auntie, Claire,…

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  • Dave Harley

    Ewing sarcoma

    Dave tells us why he's flying high, 34 years after his diagnosis of Ewing sarcoma.

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  • Tom Sheffle

    Ewing sarcoma

    "Approximately three years ago I was diagnosed with Ewing Sarcoma of my left 10th rib."

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  • Sophie Walton

    Ewing sarcoma

    "I was diagnosed with Ewing sarcoma in February 2012 when I was 18. I was studying tourism…

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  • Simon Moore

    Ewing sarcoma

    Lily, Simon's mother, shares his story

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  • Sharon Woolridge

    Ewing sarcoma

    "I started having back pains when I was pregnant with my youngest daughter Jade, who is…

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  • Shane Duffy

    Ewing sarcoma

    Joan, Shane's mother, shares his story

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  • Ruth Flanagan

    Ewing sarcoma

    "I had always been well as a child; I grew very tall very quickly, way ahead of my friends.…

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  • Ross Nugent

    Ewing sarcoma

    Sandra, Ross' mother, shares his story

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  • Oliver Curd

    Ewing sarcoma

    Sarah, Oliver's mother, shares his story

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  • NIcholas Basil Coonan (Baz)

    Ewing sarcoma

    Bridgette, Nick's mother, tells his story.

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  • Michael Pestana

    Ewing sarcoma

    Michael's parents Pam and John share his story

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  • Martin Matthews

    Ewing sarcoma

    Val, Martin's mother, shares his story

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  • Libby O'Brien

    Ewing sarcoma

    Libby's father Dave shares her story

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  • Liam Fox

    Ewing sarcoma

    " My story starts way back in the spring of 1989. I was a fairly active kid and used to…

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  • Krystle Smith

    Ewing sarcoma

    Krystle's mother Patricia shares her story

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  • Katherine Hendrix

    Ewing sarcoma

    Katherine's parents share her story

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  • John Bradshaw

    Ewing sarcoma

    "On July 12th 1980 I broke my right femur following a prank with some friends which turned…

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  • John Bisignano

    Ewing sarcoma

    John's mother and father share his story

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  • Jamie Wood

    Ewing sarcoma

    Jamie's mum, Tracey shares his brave story...

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  • Jacky Broersma

    Ewing sarcoma

    "When I was 26 I was diagnosed with Ewing Sarcoma. At the time I was living in Holland…

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  • Gary Scott

    Ewing sarcoma

    Gary's girlfriend Maria shares his story

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  • Euan Vernon

    Ewing sarcoma

    Kellie, Euan's mother, shares his story

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  • Emma Maltby

    Ewing sarcoma

    Emma's family share her story

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  • Emily Jane Cross

    Ewing sarcoma

    Dolores, Emily's mother, shares her story

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  • Daniel Barnett

    Ewing sarcoma

    In 2008 Daniel received the ‘Princess Diana Award’ for the ability to improve and inspire…

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  • Dan Gregory

    Ewing sarcoma

    Sharon, Dan's mother, shares his story

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  • Colm Rooney

    Ewing sarcoma

    Seamus, Colm's father, shares his son's story

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  • Claudia Jay Paul

    Ewing sarcoma

    This article was written by Claudia a year after her diagnosis and her dad, Roger Paul,…

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  • Claire Burgess

    Ewing sarcoma

    "The pain started when I fell over on a night out, I was in so much pain I could hardly…

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  • Ciara Hoolahan

    Ewing sarcoma

    "It all started back in 1995 when I was just a young girl of 7"

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  • Cara Yapp

    Ewing sarcoma

    "At the age of 26 I was happily living my life, living with my boyfriend, working as a…

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  • Bradley Mills

    Ewing sarcoma

    Bradley's mother Michaela shares her son's story.

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  • Bláthnaid Foley

    Ewing sarcoma

    Fiona shares her daughter Bláthnaid's story.

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  • Aharon Gillie

    Ewing sarcoma

    "When I was 8, I suffered from Ewing Sarcoma"

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  • Adrian Smith

    Ewing sarcoma

    In early 2010, at the age of 25, Adrian was diagnosed with a Ewing Sarcoma in his left…

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  • Adam Dealey

    Ewing sarcoma

    Adam was diagnosed with Ewing sarcoma in September 1994. His father, John kindly shares…

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