Share Your Story

To try and help, a number of families have kindly shared their personal experiences. Sharing your story can help others, raise awareness of primary bone cancer and inspire people to support our life saving work.

No information shared with the bone cancer research trust will ever be given to any third party.

Your details

Name*

Surname*

Phone number*

Email address*

Address line 1*

Address line 2

Town/City*

Postcode*

What best descibes you?*

I have/have had primary bone cancer

What kind of bone cancer do you/have you had?

When were you diagnosed?

What were your symptoms and how long were you experiencing them?

Are you still in treatment for primary bone cancer? If not, when were you given the all clear?

What treatment have you had / did you have? How did it work out for you?

Have you had any particularly positive or negative experiences since your diagnosis?

How have you altered your life to cope with the condition?

What has given you strength?

What would be your message to other primary bone cancer patients?

In your words, why is it so important to raise awareness about the importance of early diagnosis?

Photos Please provide photos of yourself and your journey.
This can really help others relate to and understand the story

I know somebody who has/has had primary bone cancer

Their name

Surname

Date of birth*

What kind of bone cancer do they have/did they have?

When were they diagnosed?

What were their symptoms and how long did they experiencing them?

Are they still in treatment for primary bone cancer? If not, when were they given the all clear?

What treatment did they have? How did it work out?

Have they had any particularly positive or negative experiences since diagnosis?

How have they altered their life to cope with the condition?

What has given them strength?

What would be your message to other primary bone cancer patients?

In your words, why is it so important to raise awareness about the importance of early diagnosis?

Photos Please provide photos of them and their journey.
This can really help others relate to and understand the story

I have lost someone to primary bone cancer

Their name

Surname

Date of birth*

What kind of bone cancer do they have/did they have?

When were they diagnosed?

What were their symptoms and how long did they experiencing them?

What treatment did they have?

Did they have any particularly positive or negative experiences after their diagnosis?

How was their life impacted by the condition?

What would be your message to other primary bone cancer patients?

Photos Please provide photos of them and their journey.
This can really help others relate to and understand the story

How important to you is the work of the Bone Cancer Research trust? How important to you is the work of the Bone Cancer Research trust?

How we can use your story

We will always contact you before sharing or using your story. However, to help our understanding and to respect your personal circumstances and wishes, please indicate how you would like your story to be used by us

BCRT may use my story and photo(s) on their social media channels

BCRT may use my story with my name and photo(s) on their website

BCRT may use my story to feature in marketing materials (e.g. newsletters, leaflets)

BCRT may use share my story with the media (local press, national newspapers, magazines, radio etc)

BCRT may share my story with TV media

Would you like to be kept up to date on our news and activities?

Yes, please keep me up-to-date via email.

Yes, I would like to receive text updates.

Yes, I would like to receive postal updates.

Yes, I would like to hear from you by phone.