This information has been written for patients, their families and friends and the general public to help them understand more about a rare form of primary bone cancer, known as adamantinoma. This page will detail what an adamantinoma is and how adamantinomas can be diagnosed and treated.

Printable informationPatient stories
Join our support groupShare your story

What is adamantinoma?

Adamantinoma is a rare form of primary bone cancer that is most commonly found in the shinbone (known as the tibia) and can also affect the fibula (the calf bone)(1). This cancer accounts for less than 1% of all primary tumours arising in the bone and requires the surgical removal of the tumour as the gold standard treatment method for adamantinoma(1).

These tumours grow slowly and are therefore referred to as ‘low-grade tumours’. Due to this slow growth, patients often suffer from symptoms for a long period of time before going to see a doctor.

Although adamantinomas grow slowly, they are capable of spreading to other areas of the body over time, including: the central canal of the bone, nearby muscles, nearby soft tissue, other bones and distant organs such as the lungs and lymph nodes. The spread of the cancer to other areas of the body (known as metastasis) happens in around 15-20% of adamantinoma patients and can occur many years after the diagnosis and treatment of the primary adamantinoma has taken place(2).